Tuesday, January 19, 2010

What is wrong with me? Hypothyroidism? Pituitary hypothyroidism? Hashimoto's? Leukemia? ?

I'm 19, about 5 feet tall, 116 lbs. African-American.
History: Most of the symptoms I have I've had for years, but being raised in a family that pushed me to “just deal with it” whenever I complained about feeling sick Iwas forced to push myself. I'm in a much better situation, but since I've been here my health has consistently been declining and I've developed anxitey which keeps getting worse. Life before this year was pretty close to unbearably stressful including freuqent sporadic bouts of homelessness all throughout my life as well as other traumatic events. I thought maybe it could be ptsd or GAD, but the anxitey just began now that I'm removed from the stressful situation and placed into a stable one, same with my body pretty much breaking down. Through-out my developmental years I abused a variety of pills (Been clean for awhile.) as well as ingesting mass amounts of soy (vegetarian for eight years) and starting birth control at 14. Family has a history of cancer, diabetes, heart disease, high blood pressure, addiction. Possibly a history of hypothyroid, but only one family member is officially diagnosed ,four people total with parallel symptoms though.

Symptoms including, but not limited to: Dry, brittle hair & scalp, hair loss, dry skin, several different kinds of recurring headaches (center of head between ears mostly), weight flucuations ,Hirsutism, irregular periods, infertility, acne, visual disturbances (three dots in a triangular formation), bleeding gums, tooth decay, sporadic dizziness, loss of motor control, slurred speech, fevers (past 2 month), menstrual irregularities, infertility, sinuses hurt constantly throughout ears and face, several serious sinus infections over the years, "lump stuck in throat” feeling, swelling under her chin sometimes, heartburn, stabbing chest pains (really painful almost incapacitating), heart palpitations, back & shoulder pain (excruciating, chronic), trouble digesting food, no appetite, possible gall bladder problems, daily nausea, muscle weakness, joint pain, chronic yeast infections over the years (generally very prone to infection), "tingling" in limbs kind of like they fell asleep but more intense of a pins & needles feeling, lack of energy, shortness of breath., lump on her arm about a centimeter or so high, what feels like carpal tunnel, insomnia, serious anxiety. Temperature. is very low in the morning and high at night. She's extremely sensitive to cold, sensitive to light(sometimes it causes her to vomit or pass out)
We're worried that the ranges of normality might be off considering she's a pretty tiny person and i guess wouldn't have the same range of normality as someone who is of average height and weight or someone that hasn't been on birth control on and off since they were 14

Theories have been put forth that it could be either depression in general (it absolutely isn't), 1.pituitary or secondary hypothyroid, 2.Adrenal failure originating in the pituitary gland( due to what seems like bouncing between hyperthyroid and hypothyroid) 3. Leukemia (due to her wbc being on the high end and her rbc being on the low end) or some Autoimmune disease (due to her lymphocyte count being on the high end and her monocyte count being on the low end)
Doctors are just pretty much refusing to listen to her tell them her symptoms or perform tests, especially if they know her history. Or they tell her it's anxiety or depression because her results are “within range”.
Here are a lot of test results, if you can make any sense out of them I'd really appreciate it:
BUN/Creatinine Ratio 13
Alkaline Phosphatase, S 48 (IU/L)
LDH 115 (IU/L)
AST (SGOT) 15 (IU/L)
ALT (SGPT) 14 (IU/L)
pH 6.0
Free T4 1.28 (ng/dL)
TSH 1.051 (uIU/mL)
Thyroid Peroxidase (TPO) Ab <10 (IU/mL)
free t3 3.3 (pg/mL)
antithyroglobulin ab siemens (DPC) ICMA Method <20 IU/ML --40
WBC 8.6 (x10E3/uL)
RBC 4.13 (x10E6/uL)
Hemoglobin 12.3 (g/dL)
Hematocrit 36.2 (%)
RDW 12.7 (%)
Platelets 344 (x10E3/uL)
Neutrophils 46 (%)
Lymphs 49 (%)
Monocytes 4 (%)
Eos 1 (%)
Basos 0 (%)
Neutrophils (Absolute) 4.0 (x10E3/uL)
Lymphs (Absolute) 4.2 (x10E3/uL)
Monocytes (Absolute) 0.3 (x10E3/uL)
Eos (Absolute) 0.1 (x10E3/uL)
Baso (Absolute) 0.0

Answer on What is wrong with me? Hypothyroidism? Pituitary hypothyroidism? Hashimoto's? Leukemia? ?

Hello...your test results mean nothing to us if you don't include the lab ranges. Thats because every lab has a different method of testing and have different ranges. So I am unsure what is low or high.

I have a pituitary condition AND Hashimotos. Before I was able to find a Dr. that would listen, I had many of the symptoms you describe and was told I was just depressed. I found a good Dr. that realized I might have the 2 conditions and combined they were making some of the lab results look normal (one condition was pulling them down, the other up). And he said "OF course your depressed, your very sick!" Why isn't IGF 1 including in your test results? Thats a very important test to determine pituitary functioning. All your symptoms point to a pituitary problem. You need to find a good Endocrinologist who specializes in pituitary disorders. Go to www.pituitary.org and look through Dr. listings. I'm not sure what you should do about the financial issue but maybe someone can help you out.